Just like I did when I had the biopsy of Annie in Bristol, I will keep you up-to-date with my journey through my blog as well as my Facebook and Twitter pages, with short updates and photos.
As you can see, so far I've ticked off one thing off my list called, 'Things I would like to see/do before I go to Bristol for IMRT radiotherapy'. I've still got time to do the other things, some of which have been put in place, which I'm very excited about.
I started steroids several weeks ago, I'm now on a reduced dose which started this week. My cravings have been completely different this time compared to the first time when I was taking them. This time I've been craving scrambled eggs on toast everyday for breakfast (hmm hmm)! Where as last time, the first time I was on steroids, it was Fanta lemon, Sour Cream & Chive Pringles and the hospital's cafe paninis from RVH in Belfast, when I stayed there over the summer due to Heidi (hydrocephalus).
I've decided to take a year out of school this year, which is the last thing I wanted to do. Although, I think it's the best decision for me, as my symptoms have become worse, especially my eyes. I also don't want to push myself too much where I don't get the results in my A-Levels that I hoped for and may have to repeat the year again anyway. As I'm not in school I'm keeping myself busy by doing mini art projects suggested to me by my CLIC Sargent in Northern Ireland Social Worker, as well as my fundraising and awareness raising of brain tumours. The art projects have been great fun to do, although I've just about got one done so far. I've made (very nearly finished) making a cork board of memories from when I was in Bristol over the summer having the biopsy of Annie. I kept the wristbands that I had to wear when I was in hospital in Bristol, as I do for every hospital stay, so I've pinned those on the board too.
As Halloween is coming up, my sister and I carved a pumpkin each yesterday (Sunday 27th October). My Mum also brought a 'Munchkin Pumpkin' for my pug Harry, which my sister carved a face into as well. I must say it's very cute, as it sits outside beside my sister's and I's pumpkins.
|My sister, Rebecca; pug, Harry and I with our |
pumpkins ready for Halloween.